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Author: Sandee Gertz

Skull Room

don't remember
being scared
there
in the skull room
where
i went to look for watering can
feed flowers on grandfather's grave
there
in the skull room
where
wooden cubbies cob-webbed
held single skulls
along wall vaulting fifteen-feet high
in wet alcove
side a centuries-old church
top a steep hill
with three cemetery rings concentric
but
my five years
could not
understand
the skull room
where
next day
i thought i ought
return
so walked
one mile at five years
along dirt road
alone
back
to the skull room

to look for a shovel
for grandfather's grave.

Mom’s Friend Roxanne

There is someone in my house who is not my mom. She looks like her. She smells a little like her. She likes the same jazz music as her. But she has it turned up too loud, and she’s naked. She dances around the foyer like leaves in the wind, and I want to show my mom this crazy woman, but I can’t find her.

I run to my room to get my camera, the one I got for Christmas. You have to wind back with your thumb until you hear a click, then you take your picture. I snap a photo and wait for the print. A few minutes later, the image of the crazy lady is finally complete. Her messy, sweaty hair is all over her face. Her skin is pinker than my mother’s.

I look everywhere for Mom, but she’s gone. The dancing woman must be my babysitter. I sneak past her into the kitchen and have ice cream even though it will spoil my dinner. But dinner never comes. When I wake up the next morning, I realize I fell asleep with my ice cream bowl in my bed. The melted cream dried crusty on my sheets.

“Hi, sweetie,” Mom says when I come downstairs for breakfast. The kitchen smells sweet. Mom looks pretty. Her hair is curled, and she has lipstick on. She has on dad’s old robe that she’s always wearing since he went to jail. “I made chocolate chip pancakes for breakfast. Do you want one or two?”

“Two, please.” Chocolate chip pancakes are my favorite. Mom doesn’t make them a lot, because too much sugar is bad for you. She plops two fluffy ones on my plate with a smile, and I smile back. She doesn’t mention that I finished all the ice cream.

We sit at the kitchen table, sitting opposite each other. I pour syrup over my pancakes, and a lot more comes out than I’m allowed to have. I look to see if mom noticed, but she’s drinking her coffee, staring at the wall.

“Mom.”

She jumps like I scared her. “Yes, sweetie?”

“I saw this crazy lady yesterday.”

“Where, outside?”

“No, in the foyer.”

I take my photo out of the pocket of my dinosaur robe and slide it across the table. Mom’s eyes widen, and she gasps, putting her hand over her mouth. She stares at the photo for a really long time. I wait for her to laugh, but by the time I finish my pancakes, she’s still staring. Finally, she clears her throat and gives me a smile that lasts less than a second.

“Get dressed, and I’ll drop you off to school, baby.”

It’s definitely a good day, because I normally walk to school. Dad used to drive me, but then he went to jail. Mom does a good job driving, too.

Mom talks on the phone while we drive. I sit in the backseat and look out the window. I see her look at me in the mirror, but I pretend I don’t see. She hates it when I listen to her conversations. It’s “nosy.”

“Caleb saw Roxanne last night,” she says, hushed. It’s hard to hear her over the sound of the radio. “A picture…Christmas camera…no. I swear! Yes… Well, I’m alone, y’know… mhm. I hear you. Yeah… who wouldn’t be? This is not why I called you!” she says louder. I think she says a curse word. She puts her phone down and turns the radio up.

Mom must be mad because she had to fire Roxanne. I’m sad Mom is upset, but I’m happy she’s leaving. So, I’m surprised when two days later, Roxanne is in the kitchen.

Music is playing again, too loud. I can’t concentrate on my homework. Roxanne is wearing one of my dad’s old jerseys and a pair of shorts I think are mine. She sways her hips back and forth while she stirs a boiling pot. The music has no words, and she’s singing in a language I can’t understand.

She sways and sways and sways till she’s facing me. Her face is puffy and red like she’s been crying, but she looks very happy. She drops the ladle and reaches her hands out to me when she sees me. “Caleb!”

It’s too late for me to run, and she pulls me close to her hot, moist body. I wince as she plants damp, soggy kisses on my face, and I wipe them with my hand right away. Roxanne doesn’t notice. Roxanne doesn’t notice anything.

“You look just like your daddy with your face all pinched like that. Dinner will be ready soon!” she shouts over the loud music. I groan and go back to my room. I give up on my homework and watch TV instead. Mom will have to write my teacher a note. It’s her fault for getting me a horrible babysitter who doesn’t do homework with me.

I watch TV until my eyes hurt. I don’t know what time it is, but I know it’s past dinnertime. My stomach is cramping. The music downstairs has stopped, but Roxanne never called me down for dinner. Or maybe I just didn’t hear.

The air downstairs is hot, and it hurts to breathe. It stings my eyes the closer and closer I get to the kitchen. I trip over something I can’t see and fall to my knees. Why didn’t Roxanne turn on the lights when it got dark? My eyes water, and I scream for my mom until my throat hurts.

I must’ve fallen asleep, because I woke up in my mother’s arms. She’s crying and kissing all over me. “I’m so sorry,” she says over and over. “I thought I turned the stove off. I’m so sorry.”

Why are you sorry? I want to ask, but my throat feels like it’s full of sand. It hurts to open my mouth. I need water. I need to tell her about Roxanne.

“The fire department is here,” my mom whispers quickly, like she’s in a rush. “They’re coming in to check on the oven. Why don’t you go up to your room? If you’re quiet, I’ll bring you some cookies and milk. But you have to be very, very quiet.”

I need milk now, and I haven’t even had dinner yet, but I’m too tired to speak. It feels like I’m walking in slow motion. Each step makes my head drum. When I get to my bed, I’m out like a light.

When I wake up, I realize I overslept for school. My night table is empty. Mom never brought my cookies and milk. I bury myself deep into my blankets so she won’t hear me cry.

There are two good things about September. The entire second grade is doing a play at school at the end of the month. The Wizard of Oz. I practice lines and get the part of the lion. It’s a lot to remember, so I practice in the mirror every day. My teacher gives me notes on how to look more expressive.

The second good thing is that Dad’s birthday is in September. September 12th. But I guess because he’s gone, we don’t do anything special on that day anymore. We can’t even call him because Mom said he lost his “privileges.” So, she just sleeps. She always sleeps. Every time I need something, she’s sleeping. It’s very annoying. Sometimes my dinner is left wrapped in foil on the kitchen table with a note. Sometimes there’s no dinner at all. On those days, I make my own food. I make sandwiches, or cereal, or put frozen pizza in the microwave. I’m growing up, becoming a big kid.

Mom doesn’t pick out my outfits anymore, either, so I’m dressing myself now. I like that she’s letting me be a grown-up, but sometimes homework, cooking, and practicing for the play are too much. I got a detention for missing three assignments in a week. The house stinks. The garbage is piling up too much for the lid to fit on it. I don’t know how to use the mop, so the floors are dirty and sticky.

There’s always something to do. I get home and make my afterschool snack. I tidy up and throw out the empty bottles that have been appearing all over the living room. I shower (no more baths, I’m too old now, I’ve decided), and skip homework because I really am too tired. I lock myself in my room at 9 o’clock every night because that’s when the loud music starts. That’s when Roxanne is here.

But today I must go downstairs because it’s the play. Even with being so sleepy lately, I haven’t stopped practicing. I’m the best actor in the whole grade. One day I’ll be famous.

I walk downstairs around six pm. It’s quiet, but all the lights are on. I pause at the bottom of the steps, listening. There’s no music. There’s nothing but the sound of the refrigerator and this low humming.

I slowly walk to the kitchen and realize the humming is actually snoring coming from Roxanne, slumped over the kitchen table. Her hair is all crazy as usual. She smells like chemicals and pee.

I move a chunk of hair out of her face, and her eyes flutter open. “Hey, baby,” she says, her voice sounding like she has a bunch of marshmallows in her mouth. “What’s that?”

I step out of her reach before she can touch my homemade lion costume. I glued orange construction paper to a white shirt to make it, and it’s very fragile. “Where’s mom?” I ask.

Roxanne looks confused. “I am your mom, baby.”

“No, you’re not. You’re Roxanne.”

Roxanne throws her head back and laughs loudly. There’s drool crusted on her chin, and the bathrobe she’s wearing is filthy. Dad’s robe. The one mom almost never takes off. Roxanne grabs a glass from the kitchen table that’s filled to the top with a juice that smells both sweet and sour.

She lunges forward quickly, pulling me to her by my arm. I shriek as some of the juice jumps out of the cup, spilling all over the front of my shirt. “When mommy drinks her special mommy drink, Roxanne comes out,” she giggles, her hot breath tickling my face. “Don’tyoulike mommy like this? Don’tyoulike mommy happy?”

“Get off me!” I scream. Warm tears burst out of my eyes, spilling down my cheeks. I squirm and wiggle until she lets go. “You ruined my costume! I hate you!”

Roxanne gasps, and her skin gets very red, like she’s about to explode. “You ungrateful brat! You have no idea how much I do for you! With no help! You ungrateful little—”

She lunges towards me again, her eyes sharp and angry, as if she wants to hurt me. I jump out of the way, and she crashes to the ground, her glass shattering against the floor in a million sharp pieces.

“Caleb!” Roxanne roars. I run out of the kitchen and through the front door into the night. Tears pour down my face; I can barely see. I want mommy home now. I want things to go back to how they used to be.

I don’t stop running until I get to school. My teacher is waiting in the lobby with all the other kids in the play. “Caleb!” she says when she sees me. “What happened to your costume?”

I try to explain Roxanne, her temper, and how much I miss my mom, but all that comes out is more tears, so heavy I can’t speak. My lungs are pounding, and I can hardly breathe. “It’s okay, it’s okay,” my teacher says. “I’ll take you backstage. We have an old costume you can wear.”

She quickly takes me to the room behind the auditorium and gives me a lion costume to change into. It’s too big and smells like an attic. When I’m done, I see her smelling my spoiled costume, frowning.

“I’m all ready, Mrs.,” I say.

“What’s this on your costume, Caleb?”

“Special mommy juice. Roxanne spilled it on me.”

“Roxanne?”

“She’s my mom’s friend. She’s always at our house.”

She pinches her lips together and puts the costume in a plastic bag. For a second, she seems upset, but then she turns to me and smiles. “You look great, Caleb. Break a leg!” I know she doesn’t actually want me to break my leg; she just wants me to have good luck, which I need. I don’t feel like a lion at all tonight. I feel like a sad, scared kitten.

I line up onstage with my classmates. I hear the principal of the school talking, and then with a whoosh, the curtain lifts. Bright white lights shine on us like stars. The audience cheers loudly. I look into the crowd and see rows and rows of parents, pointing at their children, smiling, and taking pictures. There are video cameras with red lights, balloons, and signs. The auditorium is full of lots and lots of people, except for one empty seat.

Everyone onstage smiles, putting on what my teacher calls their stage face. Not me. I can’t smile. I can’t stop looking at the empty chair.

My mom isn’t here. Dad is gone. Not even Roxanne, who I can’t seem to get rid of, has come to see my play.

No one cheers for me in the audience. No one at all.

If My Sister Were a Painting

the colors would change with light: 
not as all paintings must,
but as a river suddenly flush
with wild jumping fish.

pixie cut girl dashing around naked
me shy and shocked
peppermint ice cream
pink cheeks

She would turn mildly
in a tar-crack driveway and mumble.
She would take my folded poem
in her bare white hand
and read it aloud, quickly,
as if to her self.

trapped together
sweaty gas station bathroom
tears slide down
they’ll leave without us
your eyes hang low
like a hound dog’s

She would laugh loudly,
the har har pitching out
of the artwork,
startling quiet onlookers.

you sneak in
take my cloisonne bracelet
the very gift you had given me
i ignore you for months cruelly
anger dripping down my throat
dirty honey

If my sister were a painting
I would side-eye
her cut-off shorts,
upturned mouth
and the movement of hand on hip,
- something of mine, invisible in that hand-
the elbow, a fine point.

i dare you
hot green peppers
again and more out of the jar
i goad you giddy
yes twenty
you swallow startled
and we laugh

Wide feline eyes look down on me,
while fingers reach out
striking the redhead of a match
against the slate museum wall.

Later I see the clever-shy details of your face:
you gently bite your lip, hold back a smile,
raise your eyebrows in expectation.
You make me melty cheesy toast in the little oven.

She sets my poem afire.
She dissolves through a camouflage
of dark background and
pin-stick oil spots.

You teach vulnerable children,
the cherishing smile in your voice;
You get married in your backyard
and we feed carrots to the horses
lingering at the back gate.

I watch the blue, the yellow
the orange-candy heat.
The canvas curls up,
ribbons in its frame.

When I talk about childhood misdemeanors,
you are silent, mysterious.

I leave the building, scorched fingertips.

Mom Was (Not) a Handicap Lady

Mom wasn’t made to be sick. She refused to stay at home, refused adaptive clothing, and refused to acknowledge when places weren’t accessible. She dawned chunky necklaces and oversized hoops (and when she did I’d say, the bigger the O the bigger the Ho, Mom), which I’m sure she laughed about when I wasn’t looking. She wore furry and frilled tops, and pants with so many buttons they were nearly impossible for a caregiver to configure. But they did it anyway.

She made those caregivers take her to TJ Maxx to buy ballgowns for black-tie weddings, and whatever other fashionable things called her name, even if they came with literal bells and whistles. I’ve never seen a woman wear so many formal outfits from a wheelchair while also dying. Being put together, head to toe, was non-negotiable, even if she was headed to get a pedicure. She would have despised what I wore to class in college: an oversized shirt that drooped past my knees. 

Showing up in the world as an aging pageant queen was her prerogative, and she mastered it, even if a disease was taking over her body. She typed out every detail of the outfit she wanted, down to the lipstick color. If my siblings, the caregivers, or I grabbed the Fushia Fusion instead of the Berry Rumba, she wasted precious energy typing the correction. I wanted to snap, “No one will notice, Mom.”

 But she would.

Mom expected the rest of us to perform alongside her as if it required no effort at all. Early on, when she first lost her ability to walk, she insisted on sitting on her walker, letting us roll her through places backwards, as if she could stand up and walk at any moment. Three years into the disease, she couldn’t move her legs, but she didn’t want others to know that.

Three years is the typical life expectancy after an ALS diagnosis, though my mother added twelve more. Fifteen years of witnessing her fight her body for her children, until she finally decided we’d be okay and she could leave us.

Some people wondered whether it had really been ALS and not another neurodegenerative disease, because no one lives that long with ALS, or so they’d say. But my father remembers February 2004 like it was yesterday. I’m sure Mom arrived at the doctor’s appointment in gold earrings with a matching gold necklace and her iconic gold bangles. 

         After the neurologist delivered the news, calling it Lou Gehrig’s disease, he glanced at the clock and said he had another appointment to scoot off to. Before leaving, he offered one suggestion: buy a wheelchair now with an oxygen tank attachment, because that would save them money in the future. Insurance would only cover one.

The doctor wished them well, and my parents never saw him again. It took years for my mother to succumb to a wheelchair, because where I came from, no prominent socialite used such a vessel for transportation, not even 90 year old grandmothers. Wheelchairs signaled weakness, and we were not weak.          

When she finally accepted that a wheelchair was the only acceptable form of transportation, life became easier in some ways. But the places she loved the most like her friends’ homes rarely had ramps, just muscular family friends willing to hoist her over wide front stoops with huge smiles. We barely make our home more accessible, so why would they?

I dreaded pulling up to these non handicap accessible venues. Mom wanted us to have a united front, smiling while heaving her out of the car to her wheelchair without sounding like we were at the gym. Once she was situated with the right amount of space between her back and the backrest and footplates reattached, the first obstacle stared us down: walkways lined with stepping stones and loose gravel. They were the hardest because every uneven slab poised an opportunity to catch the wheel of the wheelchair and catapult her forward.

Everyone offered to help, but we knew Mom wanted us to do it, not calling attention. She never asked us to stop bending over backwards so she could live life “normally,” so we forged ahead. My father lived with the motto, happy wife, happy life, and it trickled down to me. Happy mom, happy life.

So on went the chunky jewelry, the TJ Maxx runs, and the weekly nail appointments. I can’t imagine my daughters balancing that kind of devotion in the midst of my denial.

Pushing down frustration felt like holding a beach ball underwater. My godmother knew this, and always greeted me with a libation, because she could see deep down how much I was struggling with the constant acting. She’d wave her hands by my eyeballs so they would stop sweating. If she was hosting and couldn’t get to me right away, she’d summon my godsisters to take over and acknowledge my tears.

As I got older, everything we did started to feel unnecessary and harder to justify. Why couldn’t we be at home laughing over home videos of Beau and me running around with diapers on our heads wearing Mom’s bras? Those were the glimmers I desperately wanted. But when Mom didn’t give them, my siblings and I created them, like when we found alternative usages to the ramp in the garage. Once Mom went to bed, my little brother and his friends would signal it was time to meet up in the garage and create some high school ruckus. We threw makeshift skateboarding competitions like the show Jackass. My favorite memory of this was after my rehearsal dinner. We started going down the ramp headfirst, riding it like we were paddling out on surfboards, and then I stopped myself, because hobbling down the aisle the next day really would have irked my mother.  

I stopped acting during the summer between my first and second years of college. It happened after I drove her to the antique store to shop for a chest of drawers and end tables, despite having an already furnished bedroom from the previous tenant’s hand me downs. I didn’t need, or want, mahogany bedside tables, but I knew Mom wanted me to have some, so out of guilt I drove her alone to yet another inaccessible place.

I should have known how the trip would end: with my huffing and puffing just like leaving antique stores did as a little girl. The parking lot was gravel and the aisles were too narrow. After using every ounce of muscle I had to pull her out of the passenger seat and into her wheelchair that never unfolded easily, I finally had her ready, hoping it would bring her joy to discover a timeless, vintage piece for my first apartment. I just wanted her to feel included in the part of my life she couldn’t access. Even if that came as a burden to me.

But we didn’t find joy in faking normalcy this time. Instead, I parked her near the front and rushed through the store alone, without her keen eye to distinguish trash from treasure. We left empty-handed, and I decided that would be my last solo outing with her. I’m fairly certain we drove home with the trunk cocked open and the wheelchair jutting out, because I couldn’t collapse it properly to get the hatch closed. If we were going today, I’d put my foot down and say to Ikea we go, with ramps, elevators, wide aisles, and welcoming staff. We could have laughed at home while I tried to assemble it all and complained that half the screws seemed optional. But I wasn’t ready to let the facade go back then. It’s what I thought Mom wanted.

When the caregivers took over bringing her everywhere, especially to church, I stopped going with her. Wheeling her through the vestibule had become a spectacle, a weekly public display of Mom’s strength. She attended services while enduring kidney stones, which I have to believe she did for her own joy, not for the audience. Conversely, if I have a bad dream the night before, I skip church. Showing up amid the pain isn’t really my style.

But I am not my unshakably strong mother. And my father wasn’t either. Three years and one month after the diagnosis, Dad took off his wedding ring. When you think you’re on a three year timeline, you can go as hard as you can.

But no one accounts for overtime.